This morning, June 6th, we woke up early and went to our appointment at Primary Children's. He had a CT scan first, which was difficult because he had to drink the barium stuff for an hour. Then, he went to the scan part which wasn't too difficult (especially compared to the MRI). Then, we went to meet with Dr. Riva-Cambrin the neurosurgeon.
He did a lot of tests to determine how well Quinton's brain was talking to his muscles. He tested reflex-type things and the feeling in his feet. He asked a lot of medical history questions including if we had been anywhere tropical or out of the country. I felt like Q was on an episode of House! Ha ha. Then he talked to us for about 45 heart-wrenching minutes about Q's condition. First, he has a tumor inside his spinal cord. They have to cut the spine and roll it back to get to the tumor. Most tumors of this type measure 2-4 vertebrae, but Q's spans 8 of the middle vertebrae in his spine. These types are usually termed malignant, but they always stay inside the spinal cord and don't spread. The surgury will be booked for 12 hours but may take less. Q's tumor appears to be kind of 'slick' or something without a lot of finger-type things on there. The tumor is making his spinal cord 3 times as large as it should be and the break down of communication between the brain and the muscles is causing the lump on one side of his back.
Second, he has 6 small tumors on his lung. This really is the part that baffles the doctors. If the spinal cord ones don't spread, then why does he have this going on in the lung?
Long story short, the plan is to treat the spinal tumor first. It has to come out no matter what; however, there is a 'tumor meeting' at the hospital tomorrow first thing where radiologists, pathologists, oncologists, and surgeons meet together to discuss tumor patients. Dr.Riva-Cambrin (who happens to be from Edmonton, Alberta!) will bring up Q in that meeting to see if anyone has any brilliant ideas. He's also putting his information out on the Doctor Web to see if anyone knows why these two are happening at once or how to treat the two of them together in an efficient manner.
The spinal surgery is set for a week from Thursday -- June 16th. Again, we feel the love and support from our friends and family and pray that all is well with you.
1 year ago